After battling a rare genetic condition, Greater VictoriaB次元官网网址檚 Lexi Townsin died last week at the age of six.

Lexi was diagnosed with juvenile arthritis on her first birthday, a diagnosis which became more complex a few years later when her parents B次元官网网址� Troy and Cheryl-Lynn Townsin B次元官网网址� discovered Lexi actually had a rare genetic condition called Blau Syndrome. It is a degenerative condition that affected LexiB次元官网网址檚 joints, eyes, skin and organs.

The syndrome meant Lexi lived with constant pain as her joints and tendons were inflamed and sore. Her immune system was not effective and there was a threat that she could lose her vision.

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But her condition didnB次元官网网址檛 get in the way of her being a charismatic young girl who melted hearts and loved to sing. In September, Lexi also started grade one at Ecole John Stubbs where she went to kindergarten.

An Oct. 20 Facebook post from LexiB次元官网网址檚 family shared the news of her death. A post from two days earlier said she had been airlifted to the BC ChildrenB次元官网网址檚 Hospital in Vancouver.

B次元官网网址淪he was the strongest person we have ever known and she lit up the room as soon as she walked in the door,B次元官网网址� the post from her family says. B次元官网网址淥ur hearts are in a million pieces, but the one thing that keeps us breathing is knowing that she was so loved by so many.B次元官网网址�

Troy Townsin writes childrenB次元官网网址檚 books and relies on craft fairs that he exhibits at in the coming months. Another post on behalf of Townsin calls for staff who could sell his books for him. He is looking for help in various cities in Western Canada but will be needing individuals in Victoria from Dec. 6 to 8.

Those that are interested in helping out are being asked to reach out on the Facebook page,

A page has also been set up to raise funds for the Townsin family.

READ ALSO: Royal Roads takes active role in search for cure to rare disease

shalu.mehta@goldstreamgazette.com

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