When Dana LivingstoneB次元官网网址檚 mother Irma was diagnosed with AlzheimerB次元官网网址檚 disease in 2014, she immediately made it clear to her daughter that she wanted to make arrangements for a medically-assisted death.
Her fear was that she would suffer through the disease and slowly lose her mental faculties until she got to a point where, as she put it, B次元官网网址渢heyB次元官网网址檒l throw me into a crazy house.B次元官网网址
It was not the way she wanted to die, but in the end, it very nearly was.
B次元官网网址淢y mother was an artist. A strong, caring woman and someone who deserved far more respect than she was given as the disease stole her away from us,B次元官网网址 Livingstone said.
The situation was exacerbated by family conflicts, with disputes flaring over issues like power of attorney, distribution and control of assets, and whether her mother could be cared for in the home and who should provide that care.
B次元官网网址淔inally, one day my father called an ambulance because he had been told that if he did that, she would be transferred to a facility where she would receive the care she needed,B次元官网网址 Livingstone said.
B次元官网网址淗e was wrong.B次元官网网址
Livingstone described how, when the ambulance was taking her away, her mother was still ambulatory and lucid and complained bitterly that she did not want to go.
Despite her protests, she was taken away, and committed under the Mental Health Act on the basis of the signatures of two doctors.
What followed was a horrific series of events in which her mother was heavily sedated and drugged and, according to Livingstone, ended up spiralling down further into the disease.
Finally, after a lengthy period of lobbying and advocacy, her mother was released into LivingstoneB次元官网网址檚 custody and the situation improved.
B次元官网网址淎ll of this could have been avoided,B次元官网网址 explained Livingstone.
B次元官网网址淢y mother knew what could happen and didnB次元官网网址檛 want to end her life that way. She was in full command of her faculties and she wanted to die surrounded by her loved ones and on her own terms. Had her wishes been honoured, she could have been saved a lot of suffering. Unfortunately, Canadian law did not afford her that option. Although Bill C-14 does allow for medical assistance in dying, there is a problem for AlzheimerB次元官网网址檚 patients.
The bill, passed on June 17, 2016, prohibits advance requests for medical assistance in dying that would allow eligible individuals to consent to an assisted death through a binding directive that could be honoured after the person loses capacity. That stipulation discriminates against patients with a degenerative condition such as AlzheimerB次元官网网址檚 because, by the time they can demonstrate that they are enduring unrelenting and incurable suffering, they are often not judged to be mentally competent enough to make the choice for a medically assisted death.
ItB次元官网网址檚 for that reason that Livingstone has launched a petition that will compel the House of Commons to debate a change to the law.
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The petition requires 500 signatures and has the support of Esquimalt-Saanich-Sooke MP Randall Garrison.
B次元官网网址淚 understand that this is a complex issue but there are other organizations that have already taken notice of the situation and are lobbying for change B次元官网网址 groups like Dying With Dignity Canada,B次元官网网址 Livingstone said.
B次元官网网址淭he point is that no one should have to die the way my mother did. We need to change this law so people can have the supports they need to face their end in a dignified manner.B次元官网网址
Irma Livingstone died 2陆 months ago and her daughter is intent upon making her death the impetus for change in how AlzheimerB次元官网网址檚 patients are treated.
Bill C-14, passed on June 17, 2016, prohibits advance requests for medical assistance in dying, which would allow eligible individuals to consent to an assisted death through a binding directive that could be honoured after the person loses capacity;