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CANCER & FAMILIES-Part 3 BԪַ Family focus brought to cancer care

Families have many fears when their child undergoes cancer treatment.
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Pediatric oncology nurse Anne Carrelli at Victoria General Hospital: BԪַOur families are why we are here.BԪַ

Anne Carrelli steps into the waiting area and spots three other women standing in the middle of the room talking and laughing in the midst of a group hug. They spot Carrelli and invite her in.

Within moments, the excited group decides to go into a side room to chat privately. Carrelli turns to a waiting reporter and says sheBԪַll be back in a few minutes and apologizes for the delay.

Carrelli returns a short while later and again apologizes to the reporter and points out that she was meeting with the mother of a child with cancer. In CarrelliBԪַs world as a pediatric oncology nurse with Island Health, connecting with the family means everything.

Victoria General Hospital operates the regionBԪַs only pediatric oncology daycare unit, which treats and counsels sick children in their cancer journey.

The team, which includes four nurses, a physician, social worker and child psychologist, is responsible for everything from physical checkups to chemotherapy, even palliative care. And while that seems clinical, it has one enduring quality: loving care.

BԪַYou see a family at their most vulnerable here,BԪַ Carrelli said in an interview. BԪַThere is nothing more terrifying to a family than the potential loss of their child.BԪַ

Almost all of the families that walk through the clinic doors at Vic General have been treated at B.C. ChildrenBԪַs Hospital first. ItBԪַs a way the health-care system can keep families closer to home and still provide quality care.

To Carrelli, the key to good oncology care is building trust and getting to know the families.

This allow the family BԪַ and more importantly the child BԪַ to feel comfortable in their surroundings. During cancer care families are inundated with medical information they need to know to help their child fight the cancer.

BԪַWe try to build that trust with the families so they trust themselves,BԪַ said Carrelli.

BԪַThey need to know there is more to looking at the numbers on a [medical] machine. They know their child and need to assess how their child is doing by looking and talking to them, too.BԪַ

Families have many fears when they come into care. They wonder whether the cancer treatment is going to work BԪַ and there is always an underlying fear on how theyBԪַre going to get through this with their child.

The medical team attempts to reassure families that pediatric cancer is curable, but is only as good as the science available.

BԪַWe believe in our treatments and we believe in our protocols,BԪַ Carrelli said. BԪַIf we get to a point where things donBԪַt appear to be working, we look at other options.BԪַ

Carrelli has been a pediatric nurse for more than 20 years, the last eight in pediatric oncology. She wouldnBԪַt trade her job for anything, she said.

Still, there are many hardships in the job. Like the kids that donBԪַt make it.

BԪַI might not be able change the end result, but I really have to make a difference on their way there. For me, thatBԪַs treating every family the way I would want my family to be treated,BԪַ Carrelli said.

Children fighting cancer often are more optimistic than their parents or sometimes even the health team treating them.

Most parents say kids who are fighting cancer just want to be kids. Oftentimes you can see children working hard to please their parents and do whatBԪַs expected of them.

Children, especially the younger ones, seldom talk about the cancer, Carrelli said, but some do have fears about some painful procedures.

BԪַWhen kids get very sick we are sometimes protective of them and we and the families donBԪַt tell them how much sicker they are, but the children seem to know without being told.BԪַ

Still, Carrelli stresses itBԪַs always important for the team to do a better job and make the cancer journey as easy as possible for both her young patients and their families.

 

BԪַOur families are why we are here,BԪַ

she said.

 

klaird@blackpress.ca

 

 

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