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Sick Canadians pay $33K in cancer-related costs, including income loss

Report finds some cancer patients forgoing care due to high treatment-related costs
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Natalie Lipschultz, 39, poses for a photograph in Burnaby, B.C., Thursday, Dec. 5, 2024. When factoring in her out-of-pocket expenses, lost wages and time costs, Lipschultz estimates her cancer diagnosis has cost her around $20,000 over the last 6 years. She now speaks out as an advocate focused on the early onset community. THE CANADIAN PRESS/Darryl Dyck

Since Natalie Lipschultz was diagnosed with stage three colorectal cancer in 2019, she estimates the illness has cost her more than $20,000 in out-of-pocket expenses.

Several months after her diagnosis, the Burnaby, B.C., resident was terminated from her job at an insurance company without cause while undergoing chemotherapy in January 2020. She agreed not to pursue legal action in exchange for her health benefits and severance.

Lipschultz, who was 34 at the time, had tried to balance work and treatment, answering emails on her laptop during chemotherapy.

Looking back, she wishes she had focused more on her body.

B次元官网网址淭he health care system failed me, my work at the time failed me, and IB次元官网网址檓 gonna get a little emotional, but I think I failed myself a little bit too,B次元官网网址 she says.

Her story embodies the findings of a Canadian Cancer Society report, published Monday in partnership with Statistics Canada and the Public Health Agency of Canada with analysis by Canadian Partnership Against Cancer, on the economic cost of cancerB次元官网网址 for the health-care system, but also for the patient.

The report estimates a cancer patient will face almost $33,000 on average in out-of-pocket cancer-related costs in their lifetime, including loss of income.

While CanadaB次元官网网址檚 publicly funded health-care system covers hospital costs including chemotherapy and radiation, patients still pay for some prescription drugs and travel expenses. There is also the cost of lost time going to appointments, and lost income during treatment and recovery.

Physicians and health policy experts say these costs make navigating a complex disease even more challenging B次元官网网址 disproportionately affecting lower and fixed-income patients as well as those in rural and remote communities far from cancer treatment.

The report cites studies that show the financial burden of cancer may also affect health outcomes. For instance, some may opt out or delay treatment because they canB次元官网网址檛 take time off work, pay for travel and accommodation to get care in another city, or afford a nutritious diet and healthy lifestyle. Advocates suggest federal and provincial governments should step in to help close the equity gap.

The report projects cancer in Canada is expected to cost $37.7 billion for health systems and for people with cancer and their caregivers in 2024. The health-care system pays for 80 per cent of those costs B次元官网网址 just over $30 billion B次元官网网址 and patients shoulder $7.5 billion, about 20 per cent.

Out-of-pocket costs for cancer patients and caregivers are projected to increase by almost 20 per cent over the next decade, due in part to population growth, aging and better cancer survival rates, which the report says could widen the gap between those who can afford to pay B次元官网网址 and those who cannot.

A Canadian cancer study published in Current Oncology in 2024 shows patients with family incomes of less than $50,000 per year are more likely to forgo care and report increased financial hardship. These patients reported spending an average of 34 per cent of their monthly income on cancer-related costs.

In this respect, Lipschultz considered herself fortunate. She had family and friends to lean on for financial support when she was in treatment and could take public transit from her home in Burnaby to a Vancouver cancer centre.

In 2022, her cancer returned, metastasizing to her liver, classified as stage 4. Her mother stepped in to help care for her five-month-old daughter.

B次元官网网址淚f we didnB次元官网网址檛 have that support system to lean on, I donB次元官网网址檛 really know what we would have done,B次元官网网址 she said.

At the time, Lipschultz was on maternity leave at a new insurance brokerage. B次元官网网址淲e were already kind of struggling financially with even just the maternity leave pay. Then if I had to transition to, say, a long-term disability, itB次元官网网址檚 still only a percentage of your salary. So although you do still keep your benefits, thereB次元官网网址檚 a lot of things to really think about.B次元官网网址

Like Lipschultz, about 60 per cent of people in Canada have private health insurance, most often through an employment benefit. But reducing work hours or leaving a job to manage an illness could risk losing that coverage.

As a result, Jennifer Gillis, director of surveillance for the cancer society, said patients are faced with difficult decisions B次元官网网址渨ith some individuals having to decide between their expenses like rent, mortgage payments and expenses that might come up that arenB次元官网网址檛 covered, such as prescription drugs.B次元官网网址

Costs associated with travel time can also impact a patientB次元官网网址檚 treatment decisions. A Canadian Partnership Against Cancer report in 2014 found breast cancer patients with longer trips to radiation facilities were much more likely to choose to have a full mastectomy over a breast-conserving surgery with followup appointments. Recent research in the U.S. and Sweden reinforced these findings.

At St. MichaelB次元官网网址檚 Hospital in downtown Toronto, Dr. Lisa Hicks, a malignant hematologist, says she sees the B次元官网网址渆normousB次元官网网址 emotional burden that financial stress puts on some of her patients.

Hicks treats blood cancer patients, which requires one of the longest and most complex treatments, including stem cell transplants. She says itB次元官网网址檚 a full-time job.

B次元官网网址淚magine a new job that doesnB次元官网网址檛 pay,B次元官网网址 Hicks said.

She said even patients living in the city, particularly those dependent on wheel trans or who donB次元官网网址檛 drive, find it difficult to make it to one or two appointments a week.

Claire de Oliveira, an associate professor at University of TorontoB次元官网网址檚 Dalla Lana School of Public Health, says provincial governments should explore what can be done to ensure patients are not forgoing the care that they need.

B次元官网网址淭here are some really high out-of-pocket costs for some cancer patients and that could be a barrier to access care B次元官网网址 so what can we do to address that?B次元官网网址

The cancer society says national drug coverage for take-home cancer medications could help bring down out-of-pocket costs for patients, and address disparities in access to these drugs.

On average, 70 per cent of cancer drugs are covered by provincial programs in Canada. Take-home oncology medications are fully covered in Manitoba, Saskatchewan, Alberta, and British Columbia, but not in Ontario and Atlantic Canada, according to the federal governmentB次元官网网址檚 website. Quebec provides coverage, but some patients have to pay a deductible based on income.

Stephen Piazza, director of advocacy at the cancer society, says, B次元官网网址淲eB次元官网网址檙e calling for take-home cancer drugs to be covered no matter where you live in Canada.B次元官网网址

Travel and accommodation funds are also a patchwork that should be offered consistently across the country, says Piazza.

At a federal level, he says the governments should modify the caregiver tax credit, which currently doesnB次元官网网址檛 apply to people who canB次元官网网址檛 work while taking care of someone with cancer or another serious illness full-time.

Today at almost 40 years old, Lipschultz is cancer-free, but if her illness returns, she says she would need specialized drugs that would cost more than $10,000 a month, and are not covered by private or provincial health insurance.

She says she wants health care ministers and decision-makers to acknowledge not only what cancer patients go through emotionally B次元官网网址 but financially, too.

B次元官网网址淲e still need to work. We still, a lot of times, have mortgage payments, we have young kids we have to think about. We have so much more cost, so much more emotional burden. And, you know, letB次元官网网址檚 be honest, weB次元官网网址檙e trying to live a very long time and all the costs are really gonna add up over the next, you know, 20, 30, 40 years, and weB次元官网网址檙e hoping to get there.B次元官网网址





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