A Nanaimo mother knew something was amiss when her young daughter wouldnBԪַt set foot on snow.
BԪַShe was crying and was really upset about it,BԪַ said Sara Stone, teacher-librarian for Cinnabar Valley Elementary. BԪַBecause she was so little she couldnBԪַt really explain what was going on. And so for a whole season, I carried her from the front door to the car.BԪַ
At the time, Stone was unsure how to react or interpret what her daughter was going through.
BԪַShould I be disciplining her, or am i supposed to be hugging her? And I remember being really torn, but my heart was telling me that she was struggling,BԪַ she said.
Following a diagnosis, Stone learned that her daughter was living with sensory processing disorder.
The provinceBԪַs health website, , defines the disorder as BԪַproblems processing information from the sensesBԪַ that make it difficult to respond to that information BԪַin the right wayBԪַ BԪַ in that senses either react too much or too little to stimulation.
After finding very little childrenBԪַs literature that featured a character with SPD in a positive light, Stone took it upon herself to write one.
BԪַI saw a quote somewhere that read, BԪַif you donBԪַt see the book you want to read, you got to write it yourself,BԪַBԪַ she said. BԪַAnd so I wrote it for the kids in the school and for other people BԪַ And now when I look to fill my library with neurodiverse stories there is much more, and I feel like thatBԪַs really good news.BԪַ
StoneBԪַs childrenBԪַs book Lily and the Snow, published independently in April, closely follows her daughterBԪַs experience living with and learning to adapt to the condition.
BԪַWhen it got warmer and [the snow] turned into slush, she was willing to check it out BԪַ and she had a great time once it wasnBԪַt making a crunching sound and it wasnBԪַt that icy feeling when you break through that layer and your boot goes down,BԪַ the author said. BԪַIt actually made her body feel like most of us feel like when we hear fingernails on a chalkboard. Like it made her physically super uncomfortable.BԪַ
Stone said that, in learning about SPD, one in six children have sensory issues that affect their daily lives. She also said a common misconception some people have is that the condition is exclusively linked to an autism diagnosis. There is also no evidence that SPD can be outgrown and is a condition children will have to learn to manage. At the back of the book, Stone has also included resources on SPD for reader reference.
BԪַA big part of the message BԪַ is to have support, to have people that understand you and are empathetic BԪַ Sensory processing can look so different and it can be really frustrating for parents because they may not know if itBԪַs a temper tantrum of sensory meltdown BԪַ We donBԪַt want to pressure our kids to do things that donBԪַt feel comfortable for them but to find ways that they can still function and theyBԪַre comfortable with,BԪַ she said.
A YouTube channel based out of the United Kingdom called also featured Lily and the Snow in a video posted Nov. 23.
The book can be purchased in Nanaimo at WindowSeat Books or online at .
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